The pharmaceutical industry, generally, does not like our company. As an extension of that feeling, the FDA doesn’t love us either. Basically, we are in Big Pharma’s crosshairs because the information we provide helps people find more affordable medicines from other countries and import it for personal use.
But is that a reason for Instagram to shutdown our account!? That action is nothing less than corporate-inspired, government-encouraged censorship. Mike Masnick of TechDirt refers to this as the soft underbelly of Internet censorship. Also, please read this background from the Electronic Frontier Foundation calling out Big Pharma on this issue.
Congress and the FDA are banging on the door of Facebook, Google, Instagram, etc. about stopping people from selling opioids on their platforms. We can debate until the cows come home about what content should be self-censored — meaning removed without a court order — but please hear me out on why Instagram’s dissing PharmacyChecker doesn’t even come close to acceptable and let us know if you agree or disagree.
First of all, PharmacyChecker.com does not sell or facilitate the sale of medication. Medications are not purchased on our site and we have no role in the processing of prescription orders. We verify credentials and publish information about online pharmacies and drug prices. That information is globally accessible on the Internet.
By the way, our Verification Program bans online pharmacies that ship controlled drugs of any kind into the U.S. This includes not only prescription opioids, but also Valium, Xanax, and Adderall. We’re with the DEA on strict controls and highly attuned to and concerned about the opioid crisis. I have friends who view our policy as too conservative. You get the picture.
We agree with cracking down against dealers of opioids, with Fentanyl being the greatest concern. On the other hand, we have seen Pharma and the government use a crackdown against addictive prescription drug sales online to veer into a crackdown against imports from Canada of decidedly regular meds that treat asthma, diabetes, depression, high cholesterol and blood pressure, etc.
We launched PharmacyChecker in 2003 to help people searching the Internet for lower medicine prices from real pharmacies, domestic and international. Our verification program is run by a licensed PharmD from Massachusetts, Dr. Shivam Patel. Pharmacies listed in our program must require valid prescriptions, sell only personal-use quantities, have a pharmacy license, and cannot sell controlled drugs of any kind internationally, into the U.S.
Feel free to read about our extensive protocols for verifying international online pharmacies.
In 2012, I was asked to write a chapter in a book called Hacking Politics, which is now published as an anthology about the battle to kill the Stop Online Piracy Act. My chapter was called the “Online Pharmacy Story.” In short, due to lobbying by the pharmaceutical industry, SOPA contained language that would have potentially made PharmacyChecker.com illegal at a maximum; at minimum, it would have increased our intermediary liability exposure. I strongly opposed it. And yet we see big industries moving SOPA by a thousand cuts.
I believe there’s some chance that Instagram dissed our account accidentally, based on a sweep of sites having to do with drugs, medicines, pharmacies, etc. But there’s also a small chance that Pharma’s influence led to the direct shutdown of our account as a slap in the face to PharmacyChecker advocacy efforts. I’m constantly criticizing Pharma’s propaganda about importation and online pharmacies our blog, in the New York Times, RightsCon, and directly to members of Congress in my testimony.
In fact, last year I caught PhRMA, meaning the big pharma trade association, placing Google ads using our name to dissuade people against importation of lower-cost medicines. As I wrote in our blog, that was a badge of honor but kind of disconcerting as well.
Late last month, the FDA called Instagram, Google, Reddit, and many others, to what was called the FDA Opioid Online Summit. I blogged about it beforehand mostly to note that groups funded by Pharma were well represented, ones that focus on opposing importation of lower-cost medicines and use the opioid crisis for that goal. Initially, the summit was billed as a public event, but it turns out that journalists were locked out and those that covered the public part did conclude that opioids were not the sole target, but cheaper meds were open season, too.
We want our Instagram account reinstated on principle, yet no one has responded to our multiple attempts at contacting Instagram’s customer support.
Anyone willing to weigh in on this?
Tagged with: Big Pharma, Censorship, FDA, Google, Instagram, SOPA
From left to right: Aria Iliad Ahmad, me, Dr. Jillian Clare Kohler, Tim Smith, Ron Andruff, Dr. Shivam Patel, Tracy Cooley, and Robert Guerra.
Last year I organized a panel at a conference called RightsCon to bring together Internet freedom and medicines rights activists to talk about buying medication online. And last week, I participated on a panel at RightsCon in Toronto that continued and strengthened those initial efforts. It was an honor to be on that panel, especially to hold discussions with academic experts in pharmaceutical safety and access with important roles working with the World Health Organization (WHO).
For those of you who are new to this blog, the work at RightsCon is directly relevant to PharmacyChecker’s mission to inform patients about safe and lower-cost medication options available on the Internet. Essentially, large pharmaceutical companies are lobbying governments and Internet companies to take actions that will prevent you from getting less expensive medications. This is also an issue about free speech and Internet freedom that should increasingly attract even more digital rights activists. Big Pharma is pressuring governments to pressure Internet gatekeepers to take down content. This is the Stop Online Piracy Act by a thousand cuts. We are trying to push back against that.
RightsCon is an annual conference focusing on the intersection of human rights and digital rights (issues related to the Internet). Access to medication has become an important issue at the United Nations, including by the Human Rights Council, which passed a resolution in 2016 declaring access to essential medicines a human right. Also, the UN convened a panel in 2016 dedicated to this issue, called the UN High Level Panel on Access to Medicines. Thus, the title of this year’s panel was Making Safe Online Access to Affordable Medication Real: Address the UN Human Rights resolution for access to essential medicines. (more…)
Tagged with: and Robert Guerra, Aria Iliad Ahmad, brussels principles, Dr. Jillian Clare Kohler, Rightscon, Ron Andruff, Shivam Patel, Tim Smith, Tracy Cooley
Click here to read the English version!
This article was originally published in English under the title “Minority Communities Needing Better Healthcare Means Highlighting Safe and Affordable Online Pharmacies” on the PharmacyChecker Blog on June 30th, 2017. It has since been translated by Pedro Diaz into Spanish.
En medio de un débil intento de Washington para “resolver” el problema de la seguridad social, los americanos seguimos encontrando obstáculos al tratar de dar prioridad a la salud de nuestras familias. Mientras tanto, los costos de los medicamentos siguen aumentando. Esto, en particular, pone en riesgo a las comunidades minoritarias.
La crisis que representa el aumento en el precio de los medicamentos va más allá de los grupos minoritarios, pero hay estudios que muestran que, comparados con el resto de la población, los hispanos son más propensos a no seguir sus recetas médicas debido al costo. Lo que es peor, ahora que los inmigrantes tienen miedo de salir de casa, es incluso menos probable que los indocumentados consigan los medicamentos que necesitan. Sin importar tu posición en cuanto al tema de inmigración, esta tendencia es inaceptable y debe combatirse educando a la gente sobre la existencia de precios más bajos fuera de los Estados Unidos; y sin embargo hay quienes siguen sin entenderlo…
Tagged with: Drug Prices, healthcare, minority communities, Online Pharmacy
Principles to guide the Internet community on ethical medication sales
A few months back, I wrote about a panel that I put together as part of my work with PharmacyChecker.com and Prescription Justice, a non-profit group dedicated to ending the crisis of high drug prices in America. The panel was one of hundreds of sessions at the RightsCon Conference in Brussels, an event that brings together Internet freedom, human rights and social justice activists. The panel discussed issues related to buying medication online, Internet freedom, importation and drug affordability – and the negative impact of the pharmaceutical industry on all of the above.
Essentially, drug companies have spent millions of dollars on funding “non-profit” groups, public relations efforts, lobbying Congress and international organizations, Interpol (I kid you not), etc., with the goal of making it hard, if not impossible, for people to buy safe and lower cost medication online from other countries, which include people in America, that can’t afford it locally. Their activities intentionally conflate the intentional sale of counterfeit and substandard drugs with safe international online pharmacies.
The panel was a great step forward in giving the consumer side of this issue a larger voice. The panelists discussed and edited a draft set of principles on medication sales and the Internet. It took a while, but, on June 15, 2017, Knowledge Ecology International and Prescription Justice finalized and endorsed what we’re calling the Brussels Principles, which are published below. (more…)
Tagged with: accessnow, brussels principles, KEI, Rightscon
Defending consumer rights to affordable medication on the Internet (left to right: Gabriel Levitt, Jeremy Malcom, Andrew Goldman, Burcu Kilic, Paul Zickler)
Access to medicines and Internet rights advocates came together yesterday for a panel at the RightsCon conference in Brussels, Belgium, to discuss the importance of, and threats to, online access to safe and affordable medication. In my capacities as president of PharmacyChecker.com and founder of Prescription Justice, I submitted the concept for this panel to RightsCon, a conference that focuses on issues relating to human rights and the Internet, such as freedom of expression, curbing violent extremism, and privacy and data protection.
The panel included Jeremy Malcolm, Electronic Frontier Foundation; Andrew Goldman, Knowledge Ecology International; Burcu Kilic, Public Citizen; Paul Zickler, Canadian International Pharmacy Association, and Gabriel Levitt. We came together to push back against the pharmaceutical industry’s attempts to control what is and is not permissible on the Internet when it comes to medication sales and the importation of prescription drugs for personal use.
My presentation’s focus was on the tens of millions of Americans who are struggling to afford medication and how the Internet provides them with access to lower cost medication imported for personal use. I will follow-up with a more detailed report on the panel discussions and a workshop that followed, where we drafted a Statement of Principles for the online sale of medication, one inspired by the belief that access to affordable medications is an essential component to the fundamental human right to health.
Tagged with: CIPA, Electronic Frontier Foundation, Knowledge Ecology International, Public Citizen, Rightscon
Americans Can’t Afford It.
Last week, an article was published by Jeremy Malcolm, senior global policy analyst for the Electronic Frontier Foundation, under the appropriate title, “How Big Pharma’s Shadow Regulation Censors the Internet.” Basically, Jeremy explains that due to drug company money and political influence in the United States, there are activities going on both in plain view and behind the scenes that are meant to curtail and even end access by Americans to lower cost medications being sold on the Internet.
I’ve been writing about this – albeit in less Internet policy, theoretical terms – for years and testified before and warned Congress in 2013 on this issue. About a month ago, I published an article on Circle ID, a source of news and opinion about Internet policy and governance, describing the actions of drug companies to dominate the Internet. My hope was to reach people just like Jeremy Malcolm at organizations like the Electronic Frontier Foundation (EFF). EFF is a non-governmental organization, founded in 1990 to defend civil liberties in the digital world. They champion “user privacy, free expression, and innovation through impact litigation, policy analysis, grassroots activism, and technology development.” Read about its awesome work and history here. (more…)
Tagged with: Alliance for Safe Online Pharmacies, Center for Safe Internet Pharmacies, Electronic Frontier Foundation, jeremy malcolm, LegitScript, NABP, shadow regulation, voluntary agreements