From left to right: Aria Iliad Ahmad, me, Dr. Jillian Clare Kohler, Tim Smith, Ron Andruff, Dr. Shivam Patel, Tracy Cooley, and Robert Guerra.
Last year I organized a panel at a conference called RightsCon to bring together Internet freedom and medicines rights activists to talk about buying medication online. And last week, I participated on a panel at RightsCon in Toronto that continued and strengthened those initial efforts. It was an honor to be on that panel, especially to hold discussions with academic experts in pharmaceutical safety and access with important roles working with the World Health Organization (WHO).
For those of you who are new to this blog, the work at RightsCon is directly relevant to PharmacyChecker’s mission to inform patients about safe and lower-cost medication options available on the Internet. Essentially, large pharmaceutical companies are lobbying governments and Internet companies to take actions that will prevent you from getting less expensive medications. This is also an issue about free speech and Internet freedom that should increasingly attract even more digital rights activists. Big Pharma is pressuring governments to pressure Internet gatekeepers to take down content. This is the Stop Online Piracy Act by a thousand cuts. We are trying to push back against that.
Principles to guide the Internet community on ethical medication sales
A few months back, I wrote about a panel that I put together as part of my work with PharmacyChecker.com and Prescription Justice, a non-profit group dedicated to ending the crisis of high drug prices in America. The panel was one of hundreds of sessions at the RightsCon Conference in Brussels, an event that brings together Internet freedom, human rights and social justice activists. The panel discussed issues related to buying medication online, Internet freedom, importation and drug affordability – and the negative impact of the pharmaceutical industry on all of the above.
Essentially, drug companies have spent millions of dollars on funding “non-profit” groups, public relations efforts, lobbying Congress and international organizations, Interpol (I kid you not), etc., with the goal of making it hard, if not impossible, for people to buy safe and lower cost medication online from other countries, which include people in America, that can’t afford it locally. Their activities intentionally conflate the intentional sale of counterfeit and substandard drugs with safe international online pharmacies.
The panel was a great step forward in giving the consumer side of this issue a larger voice. The panelists discussed and edited a draft set of principles on medication sales and the Internet. It took a while, but, on June 15, 2017, Knowledge Ecology International and Prescription Justice finalized and endorsed what we’re calling the Brussels Principles, which are published below. (more…)
Defending consumer rights to affordable medication on the Internet (left to right: Gabriel Levitt, Jeremy Malcom, Andrew Goldman, Burcu Kilic, Paul Zickler)
Access to medicines and Internet rights advocates came together yesterday for a panel at the RightsCon conference in Brussels, Belgium, to discuss the importance of, and threats to, online access to safe and affordable medication. In my capacities as president of PharmacyChecker.com and founder of Prescription Justice, I submitted the concept for this panel to RightsCon, a conference that focuses on issues relating to human rights and the Internet, such as freedom of expression, curbing violent extremism, and privacy and data protection.
The panel included Jeremy Malcolm, Electronic Frontier Foundation; Andrew Goldman, Knowledge Ecology International; Burcu Kilic, Public Citizen; Paul Zickler, Canadian International Pharmacy Association, and Gabriel Levitt. We came together to push back against the pharmaceutical industry’s attempts to control what is and is not permissible on the Internet when it comes to medication sales and the importation of prescription drugs for personal use.
My presentation’s focus was on the tens of millions of Americans who are struggling to afford medication and how the Internet provides them with access to lower cost medication imported for personal use. I will follow-up with a more detailed report on the panel discussions and a workshop that followed, where we drafted a Statement of Principles for the online sale of medication, one inspired by the belief that access to affordable medications is an essential component to the fundamental human right to health.